The surgeon’s role in palliative care

Alley, P G

North Shore Hospital, Dept of Surgery

Discusses the ethical and clinical dilemmas that confront a surgeon when presented with a terminally ill patient. Considers the medical problems complicating surgery in terminally ill patients and surgical techniquest helpful in palliation. Deals with the surgery of metastatic disease, surgery demanded by side effects therapy and surgery of unrelated benign conditions in patients with terminal illness.

Must cancer kill?

Hall, Sandi

Hydrazine sulfate could save many cancer victims, but there is no profit in it.

Palliative care (towards 2000)

MacLeod, R D

Hospice

‘research publication’ Reference only

Diversity among hospice volunteers: a challenge for the development of a respons

Roessler, A; Carter, H; Campbell, L; MacLeod, R D

Mary Potter Hospice

Voluntary organizations such as hospices are increasingly being called upon to substitute for state health and social welfare delivery at a time when volunteer contributions are threatened because of organizational and demographic changes. These changes include: the adoption by the nonprofit sector of market strategies in response to health and social welfare reforms, increases in the size and complexity of hospices, increasing professionalisation of staff, and the move of women away from voluntary work in the health and welfare services to paid employment. With these changes, hospices must be knowledgeable about their volunteer workforce and resourceful if they are to continue to attract and retain volunteers. A survey of volunteers conducted at the Mary Potter Hospice examined differences in volunteers’ characteristics, motivations for joining hospice, and factors affecting work satisfaction according to age, gender, and the length of time volunteers had worked. Those findings of particular relevance to program development were: (1) the tendency for the recently recruited volunteers to be in paid employment; (2) the mixed motivations of the younger volunteers, reflecting both altruistic and personal gain needs; and (3) the rewards commonly identified by volunteers, such as feeling their work is of value, being accepted by hospice staff, and feeling like important team member. Practical outcomes of the study are described. Comment Abstract only Also as reference in ‘research publications’ in Hospice New Zealand newsletter Jan/Feb

Quality of information on hospice referral,

Donaldson, N; Carter, H; Green, R

Mary Potter Hospice and Wellington School of Medicine – GP Department

Good quality referral information provides hospice staff with essential information at a time when patients are particularly vulnerable. An Ideal Referral Criteria tool for measuring the quality of general practitioners’ information was piloted at one hospice site. Overall inter-rater reliability was 90%, with individual categories raging from 19% to 34%. Cronbach’

Hospice management

MacLeod, R D; Schumacher, M

Mary Potter Hospice

Comment ‘paper submitted for publication’ reference only

Volunteersim what is it?

[Author unknown]

Abstract Comment This paper is re-printed from Red Cross News Issue 2 1982

Taxation and charitable organisations

Calder, Ian

Abstract Comment Not full paper - Notes on the presentation only

[title unknown]

Lichter, Ivan

Abstract Comment Not full paper - a note on the forthcoming presentation of 2 papers by Ivan Lichter

The four essentials

McCorkle, R

Abstract Comment Not full paper – reference only Paper available from Te Omanga Hospice

Occasional paper 8 - Specialist palliative care: a statement of definitions

The National Council for Hospice and Specialist Palliative Care Services

Abstract Comment Not full paper – reference only Available from HNZ

Occasional paper 5 – Research in palliative care: the pursuit of reliable

The National Council for Hospice and Specialist Palliative Care Services

Abstract Comment Not full paper – reference only Available from HNZ

[Presentation on the South Auckland Hospice]

[Author unknown]

Abstract

What have we grown?

Dixon, Alison

Abstract

New Zealand site visit report

Wilson, Donna

Abstract

Draft report of the 1995 New Zealand wide hospice education needs survey. Part A

Hicks, Liz

Abstract Comment Draft

The New Zealand Palliative Care Strategy

(Hon) King, Annette

The Ministry of Health, Wellington, New Zealand

Abstract

A report of the consensus forum on hospice/palliative care services

Messervy, Pamela

Ministry of Health, New Zealand

Abstract

The care of the terminally ill

The Working Group of the Wellington Health Services Advisory Committee

Wellington Health Services Advisory Committee

Abstract

Specialist palliative care: a statement of definitions. Occasional paper 8

The Working Party of the National Council for Hospice and Specialist Palliative Care Services

National Council for Hospice and Specialist Palliative Care Services

Abstract

A report to the National Health Committee on the results of consultation on supp

National Health Committee

Ministry of Health, New Zealand

Abstract

Education in palliative medicine in New Zealand; Hospice services in New Zealand

Lichter, Ivan

Report of the inaugural Meeting of Doctors practising Palliative Medicine held at Lincoln College

Abstract Comment Abstracts from each paper only

You can’t sell death

Brown, Dwyllis; Ross, Alison

Hospice New Zealand Conference

Abstract

The right place to die – who chooses?

Carter, Helen; Francis, Miriam; Scott, Ian

Hospice New Zealand Conference

Abstract

Pain management in palliative care : A modified Delphi consultation study

Goodyear-Smith, Felicity (University of Auckland, Division of General Practice and Primary Health Care); Farnell, Alan (St. Joseph Mercy Hospice, Auckland).

Identifies existing guidelines for chronic pain management and determines the degree of NZ consensus for these. Produces a summary based on the Expert Working Group of the European Association for Palliative Care recommendations, and conducts a modified two-round Delphi consultation with an anonymous panel of palliative care specialists and GPs with a special interest in the subject

New Page

Depression in chronic pain and terminal illness, “At Home with Pain Contro

Depression in chronic pain and terminal illness, “At Home with Pain Control”,

Director of Northland Support’s Child and Family Service

Presentation: “At Home with Pain Control” organised by the Bay of Islands Palliative Care Society Inc 22-23 March 1990, Hospice New Zealand newsletter, March 1991/1

Audit of cultural differences in opoid use for pain manageme

Oxenham, David; Morby, Lorriane; Brosnan, Eileen

South Auckland Hospice

Audit of opoid use in different cultural groups at initial hospice visit and 6 weeks later. Comment At this stage unpublished

Management of malignant bone pain

Royle, D; MacLeod, R D

Comment ‘paper submitted for publication’ reference only

Sedation in terminally ill patients

Macleod, A D (Sandy)

Nurse Maude Hospice, Christchurch

Explains terminal sedation to relieve refractory symptoms; distinguishes it from physician-assisted euthanasia. Describes the clinicial indications for palliative sedation and the method.

Chemotherapy and radio therapy in palliative care

Marsden, Sue

Waikato Hospital, Palliative Care unit, Hamilton

Explains the role of chemotherapy in relation to the type of cancer, performance status, prior chemotherapy, and patient preference. Describes symptom control with chemotherapy, the role of hormones and of radiotherapy. Compares palliative versus radical radiotherapy, outlining the side effects of radiotherapy. Discusses specific indications for radiotherapy in symptom control, mechanisms of pain relief, neurological symptoms, obstructive symptoms, haemorrhage, skin lesions, and other local tumour effects.

Patients in a palliative care setting: prevalence and causes of anaemia

Dunn, A; Carter, J; Carter, H

Mary Potter Hospice and Wellington Hospital

This study aimed to determine the prevalence of anaemia and its causes in patients admitted to a hospice inpatient unit. An audit was undertaken, with prospective collection of blood test results. One hundred and five patients admitted to Mary Potter Hospice had routine blood testing. There was a high prevalence of anaemia (defined as a haemoglobin < 120g/l) in this inpatient population (64%). Over 60% of anaemic patients had anaemia of chronic disease. Future research directions are outlined. Comment At this stage to be submitted shortly to the stated publication

Community study of cancer related breathlessness and fatigue

Costello, Helen

Nursing and Midwifery Dept: Victoria University of Wellington. (School of Nursing and Health Studies

The collaborative nature of this study is essential for the recruitment, data collection and evaluation processes. The Wellington Cancer Centre, Mary Potter Hospice and Community Care for the patients from these organisations are involved directly in recruitment and data collection processes. Te Omanga Hospice also supports the study with patients refereed from other organisations also in their service being supported to continue in the study. Work in progress has been presented in the form of updates on the study have been undertaken in the participating organisations. In 2002 presentations will be planned to present the results and workshops regarding the research intervention will be offered to the organisations involved. The clinical component of this study is near completions and the work will be written up in the year 2002. An anticipated outcome form the study of producing a patient/carer and health professional resource booklet is currently in draft form and consultation is occurring with the clinical agencies involved. This resource will be available to patients and practitioners on completion of the clinical work in 2002.

Nausea and vomiting in palliative car

MacLeod, R D

Hospice

‘research publication’ Reference only

Palliative care

MacLeod, R D

Hospice

‘research publication’ Reference only

Management of constipation in palliative care

Royle, D; MacLeod, R D

Hospice

Comment ‘research publication’ Reference only

The management of nausea and vomiting in advanced cancer

Twycross, R; Back, I; (MacLeod, R D contributing author)

Comment ‘research publication’ Reference only

Explaining suffering and healing : A comparison of Pentecostal and secular gener

Jaye, Chrystal

Dunedin Medical School, Dept. of General Prac

Presents the findings of a study of the ways in which Christian and agnostic GPs explain personal experiences of suffering and healing. Uses soteriology and theodicy as a framework for explaining illness and health-seeking strategies. Argues that soteriological concerns, or connotations of salvation, are present when GPs seek healing, and should be viewed within the context of theodicy to explain suffering and affliction. Inteviews 15 members of a Pentecostal church, four of whom were GPs and six GPs without religious affiliation

Going gently into the good night : psychological contributions to palliative car

Owens, R Glynn

University of Auckland

Considers the psychological impact of impending death from terminal illness. Examines the role of psychology and identifies three ways in which psychology might contribute to the field of terminal care. Draws upon research to discuss the role of caregivers and the dreams of dying people. Looks at how psychologists can alleviate stress for the former and monitor dreams for signs of anxiety in the latter

Choosing the moment of death

Maries, Jane

Te Omanga Hospice, Lower Hutt

Recounts the experience of a palliative care nurse in caring for a terminally-ill patient who died with only her present, which prompted the nurse whether people choose when to die. Performs two informal surveys of 30 and 35 deaths observed during 6 months at Te Omanga Hospice in 1999 to determine whether more patients died in the presence of loved ones than otherwise.

Report of “partage” a creative session/experience conducted during t

Scanlon, Sister Mary Teresa

Mary Potter Hospice, Wellington

Report of “partage” a creative session/experience conducted during the 6th world congress on terminal care, Montreal. Sept/Oct 1986, Hospice New Zealand Conference 1988

Psychological Impact of Predictive Testing for Colonic Cancer

Reeve, Jeane; Owens, R Glynn; Winship, Ingrid M;

Psychology Department, University of Auckland

Advances in DNA technology have facilitated presymptomatic testing for an inherited predisposition to a number of autosomal dominant cancer syndromes. While testing is generally undertaken with informed consent and within a counselling protocol, there is still much to be learned about the psychological impact of DNA testing in a predictive setting. In this study, patients’ experiences were recorded using in-depth interview techniques following earlier testing for hereditary non-polyposis colorectal cancer, which was coordinated through a hereditary cancer registry. Thematic analysis of the transcripts revealed consistent issues pertaining to identity a well as emotional responses to previous preventative strategies and ongoing cancer screening options.

Within the circle of care: patient experiences of receiving palliative care

McKinlay, Eileen

Mary Potter Hospice

This paper presents an overview of a qualitative study of six recently discharged hospice patients, who had experienced at least two episodes of in-patient palliative care, and when interviewed were asked about their experience of care. The resulting data formed a representation ‘the circle of care’, with a central theme being the recognition of patient ‘identity’ . Other emerging themes are ‘humour’, ‘being watched’, ‘caring manner’, ‘being safe’, ‘chosen isolation’, ‘relinquishment’, and ‘relaxation’, ‘keeping control’, ‘awareness of mortality’, ‘recognition of the palliative care philosophy’, and the ‘effect of the aesthetic and spiritual environment’. abstract only

Understanding dying well for patients receiving palliative care

McNaught, A; Spicer, J

Massey University and Arohanui hospice

A primary objective of palliative care is to ensure that patients die well. However, research on dying well has almost exclusively focused on health professionals’ perspectives, rather than those of the patients. This project aims to develop an understanding of dying well from the patient’s perspective. A standardized interview technique will be used with 50 patients from Arohanui Hospice who are receiving palliative treatment for incurable diseases, predominantly cancer. Individual differences in meanings of dying well are expected, and it is hoped that future palliative care practices will be improved by understanding and attending to these differences.

Early exposure to people who are dying: turning points in learning to care for p

MacLeod, R D; Parkin, C; Pullon, Robertson G

Mary Potter Hospice, Wellington and Department of General Practice, Wellington School of Medicine an

Various shortcomings have been identified in medical care for people at the end of life and an emphasis has been placed on improving all aspects of this type of care. However, the nature of care and in particular the way in which caring is learned remains problematic for medical educators and the profession. Recent work indicated that doctors learn to care from people who are dying in an emotional and intimate way. This paper reports on the development of a programme designed for medical students in their first clinical year who are given the opportunity to spend time with a person who is dying and their family. The students are required to produce a portfolio assignment that includes a personal reflection of the experience. The findings from a phenomenological study undertaken using these personal reflections are reported. The essence of these reflections and comments are interpreted as being embedded in five key themes that contributed to the structure of the experience for them. The encounters differed from what the medical students had anticipated, students identified an emotional component to the experience; they explored their own and the patient’s understanding of spirituality; they reflected on personal meanings of the encounter and they suggested ways in which they may learn to care for people who are dying more effectively. The way in which these students approach end of life care has been altered through a transformative educational experience that encouraged them to draw on their own experiences and skills. Their learning was facilitated by the writing of these accounts and the discussion that each group held with teaching staff at the conclusion of the programme. A number of turning points can be identified with the students’ accounts of the experience. The study will continue to identify whether these changes are maintained as the students progress through their clinical years and beyond graduation. Comment At this stage submitted for publication in 2001 Abstract only

Living with a terminal illness – what matters most?

MacLeod, R D; Carter, H; Brander, P; McPherson, K

Our understanding of terminal illness and its consequences has been predominately based on models derived from expert definition. This paper describes a study investigating what people living with terminal illness consider to be most important in their lives. Implications of the findings for the development of patient-centered practice including processes like goal setting and symptom management are explored. A qualitative study based on interviews with 10 people living with terminal cancer was carried out. Participants were asked to identify the most important consequences of living with their illness. Analysis of interviews incorporated principles of narrative analysis and grounded theory. Over 30 categories were determined. These were collated into five themes: Personal/Intrinsic Factors, External/Extrinsic Factors, Future Issues, Perceptions of Normality and Taking Charge – which encompassed the important issues for all participants. Each theme focused on ‘life and living’ in relation to life as it was or would be without illness. The practical issues of daily living (including symptom relief, self-coping strategies, support requirements/expectations from significant others) and the opportunity to address more philosophical issues surrounding the meaning and purpose of life emerged as areas of importance. Themes were related in a bi-directional manner, both influencing and being influenced by the one another. The findings suggest there are inter-related themes of concern to people living with terminal illness. There appeared to be a central concept (‘Taking Charge’), which related to the level of engagement with the person’s experience of ‘living with dying’. The findings suggest that the way in which we manage patients’ involvement, even in areas such as symptom relief and maintenance of dignity, can impact on the more existential aspects of living with dying. We suggest that establishing and understanding the patient’s perspective in relation to each of these themes may assist in developing management strategies more appropriate to those living with terminal illness. The findings, in part deepen our understanding of, but also challenge, traditional ‘expert defined’ goals of care such as the achievement of a good death or enhancing quality of life. Comment At this stage submitted for publication in 2001 Abstract only

Learned helpless in palliative care patients

Morss, Eileen; Mitchell, Dr Penny

Research on learned helplessness will be undertaken in 2002 and will include reflections from Hospice Staff.

Teaching about living and dying: medical undergraduate palliative care education

MacLeod, R D Robertson G

Palliative medicine education has been undertaken in a number of clinical schools for over 20 years, but systematic education in this subject area is still not common. During the last five years at the Mary Potter Hospice, in partnership with the University of Otago, Wellington School of Medicine, we have been developing a longitudinal experience for our students. In this paper we summarise our experiences with the intention of providing some ideas and guidance for schools that have not yet begun including this important area in their regular curriculum. In each of their clinical years, students have an opportunity to explore aspects of the care of people who are dying. Didactic learning in the classroom is reinforced by clinical exposure in the hospice in-patient unit. Students state that their confidence in providing palliative care and their ability to communicate with people who are dying are improved and that they would value more exposure to this aspect of medical practice. This programme provides an opportunity for a closer liaison between the hospice and the University. More formal links are being developed. Comment ‘research publication’ Abstract from Hospice New Zealand newsletter, December 2000, p. 7.

On reflection: doctors learning to care for people who are dying

MacLeod, R D

Mary Potter Hospice

Based on phenomenological research undertaken towards a doctoral degree. Examines doctor’s experiences of caring for people who are dying and the significance of ‘turning points’ in clinical practice in teaching doctors how to ‘care’. Comment ‘paper submitted for publication’ reference and little abstract only

Health professionals’ perception of hope: understanding its significance i

MacLeod, R D; Carter, H

Mary Potter Hospice

Review of the literature on hope. Based on earlier research work, which looked at health professionals’ attitudes to patients with MS and MND. This paper provides an overview of the literature on health professionals’ perceptions of hope with particular reference to care at the end of life, drawing predominantly on work reported from the fields of medicine and nursing. Various frameworks have been proposed for the maintenance of hope in those who are critically ill or dying and these are outlined. Strategies for maintaining or engendering hope, particularly for those who are dying, are identified. Comment is made on the importance of hope inspiration in maintaining the quality of life of people who are dying. Although there is a growing body of literature on hope, the principles enunciated are not always borne out by health professionals in their clinical practice. The conclusion identifies the common elements of hope described in the literature that are central to the maintenance of an individual’s quality of life. Comment Abstract only

End of life issues for Maori

Baker, M

‘paper in progress’ a PhD thesis considering end of life issues, including palliative and hospice care for Maori.

The interstellar cold” Parent’s experiences of their child’s p

Darbyshire, P; Heller, A; Fleming, S

Department of Nursing and Midwifery Research and Practice Development, The Waikato Polytechnic, 1997

The study was a qualitative exploratory investigation which involved interviewing seventeen parents from ten two-parent families who had cared for their dying child, within the last five years. Of the ten families, four lived in ‘rural’ locations and the remainder lived within a 25km radius of central Adelaide. Comment Abstract only

experience of the journey towards death by the terminally ill

Niven, E

publication unknown (Hospice NZ Newsletter)

Comment ‘paper in progress’ reference only

A descriptive study of the spiritual needs of patients with leukaemia

Davenport, F A

Comment ‘unpublished report or university thesis’ reference only research project presented in partial fulfilment of the requirements for the Master of Nursing degree

An understanding of family in the context of families facing the diagnosis of ch

Watson, P B

Comment ‘unpublished report or university thesis’ reference only a research project presented in partial fulfilment of the requirements for the degree of Bachelor of Arts (Honours) in nursing

Women and HIV/AIDS in New Zealand in 2000

Bennett, J

Stories from New Zealand women who are HIV positive. Feminist analysis and thematic analysis. Interviews taped and transcribed. Themes taken from transcripts, emphasis will be feminist looking at issues around power and gender. Comment ‘paper in progress’ – not completed

Loss of a Child

Clarkson, Tricia

Comment Abstract also in Hospice New Zealand newsletter September 1989/3

Grief in AIDS

Rodenberg, Hettie

Abstract Comment Abstract also in Hospice New Zealand newsletter, September 1989/3

The importance of ‘personal work’ in working with people who are dyi

Marsden, Sue

Waikato Hospital, Oncologist

Abstract Comment Abstract also in Hospice New Zealand newsletter, September 1989/3

Grief and loss

Parker, Merryn

Abstract Comment Not full paper - Notes on the presentation only

Death and dying from Maori perspective

McKinney, Carolyn

Abstract Comment Not full paper - Notes on the presentation only

When grief is complicated

Gallocher, Sheena

Abstract

Research into the spiritual dimension!

[Author unknown]

Abstract Comment Not a full paper – reference only Available from HNZ or St Christopher’s Hospice

Pulsed electrostatic fields (ETG) to reduce hair loss in women undergoing chemot

Benjamin, B; Ziginskas, D; Harman, J; Meatkin, T

Abstract Comment Abstract only

Dying and Still Doing… The Meaning of Occupation to People with Terminal I

Elliot, Belinda

Abstract A dissertation completed in partial fulfilment of the requirements for B. Occupational Therapy (Hons).

An exploration of hospice nurses' responses to non-acceptance of treatment or ca

Simpson, Jillian A

Massey University

Abstract A research project presented in partial fulfilment of the requirements for the degree of Masters in Nursing.

An evaluation of the Te Omanga Hospice Programme from a family perspective

Hunt, Esther

Abstract

Most frequent and difficult problems encountered by nurses when caring for dying

Hepburn, Leona

Abstract

Impact of life threatening cancer on intimacy and sexual needs, Palliative care

Victoria University of Wellington

Abstract

Barriers to Self Care

Wilson, Judith

Abstract

Going gently into the good night; psychological contributions to terminal care

Owens, Glynn R

Abstract

Northland Palliative Care Project 2001

Darkins, Tina

Abstract Thesis on the evaluation of a stress management programme introduced to the hospice to help staff cope with the stress that they feel when caring for the dying patient and their family. Comment Abstract in Hospice New Zealand, December 2000, p. 8

Strengthening family bonds, art therapy in palliative care

Brownlow, Mary

Hospice New Zealand Conference

Abstract

Hope and harm: ethical issues in the provision of palliative care to culturally

Campbell, Deborah; Small, Davis; Moore, Gabriel

Hospice New Zealand Conference

Abstract

Operating a community palliative care service

Nichols, Jan

St Joseph’s Mercy Hospice, Auckland

Provides guidelines based on the experiences of St. Joseph’s Mercy Hospice before, during and after the establishment of its Community Palliative Care team. Discusses when to use a palliative care service, the coordination of care, staffing, family and GP involvement, and home death

Care of the dying : a great challenge

Hepburn, Leona

Gisborne Palliative Care Service

Introduces the Gisborne Palliative Care Service, reflecting on its beginnings, its operation and its ongoing work. Details a research study undertaken after the first one hundred patients to evaluate the service. Information in this study includes demographic data, symptoms and pain experienced, pain control methods used. The format for this study was designed and the figures collated by Dr James Carstens.

Service innovations in palliative care

Hessel, Gail; Ruth, Sally;

Service innovations in palliative care

Impact of a hospital palliative care service: perspective of the hospital staff

Carter, H; McKinlay, E; Scott, I; Wise, D; MacLeod, R

In 1998, a palliative care service was implemented at Wellington Public Hospital, a large tertiary teaching hospital. A unique feature of this service was that it was fully funded by Mary Potter Hospice over the 18 months of its operation. A year after its implementation the service was evaluated. The service was found to have led to an increase in referrals from specialties outside the Cancer Centre. The majority of doctors, nurses and social workers strongly agreed or agreed that the service had a positive effect on patient’s care and effectively addressed their symptom management needs. There was less agreement that patient’s spiritual care needs were met and that useful discharge planning advice and staff support had been provided. Comment At this stage submitted for publication to Journal Palliative Care (March 2001) and under review.

Hospital referrals to a hospice: timing of referrals, referrer’s expectati

Masseroto, A; Carter, H; MacLeod, R D

Hospital referrals to Mary Potter Hospice were reviewed prior to the implementation of a new hospital palliative care support service. The hospital palliative care service aims to improve the communication between health professionals in the acute hospital and hospice, and to advise the hospital staff on its management of terminally ill patients. The purpose of this review was to provide baseline information that would assist the hospice with the planning and future evaluation of the new service. Information included the timing of the referrals, the type of referrals information provided by hospital doctors, and their expectations of hospice care. One fifth of patients were referred near to death. While medical information was nearly always provided on referral, information on the psychological, spiritual and social dimensions of care was often absent. A third of hospital doctors expressed their expectation of the hospice as ‘to take over’ the patient’s care. This suggest the hospital palliative care support service should encourage health professionals to take a more active role in caring for dying patients. The findings are discussed in relation to the goals of the new hospital palliative care support service. Comment Abstract only

Evaluation of a hospital palliative care support service

Carter, H; McKinlay, E; Scott, I; Wise, D

publication unknown (Hospice Newsletter)

Comment ‘paper in progress’

Nursing review: towards the development of a community nursing service

Schumacher, M; Hodge, B; Carter, H

Mary Potter

‘unpublished report or university thesis’ reference only prepared for Mary Potter Hospice Foundation Board, Mary Potter Hospice

Evaluation of the hospital palliative care support service, Wellington hospital

Carter, H; McKinlay, E; Scott, I; Wise, D; MacLeod, R

Mary Potter

The paper describes: (1) the development of the new palliative care service; (2) the referrals to the new service, their characteristics and origins; (3) comparisons of hospital staff’s perceptions of the principles underlying palliative care delivery in specialities that used the new service frequently vs those that used it infrequently. Implications for the future development of the services are discussed. Comment ‘paper in progress’ abstract only

Work disability among cancer patients

Greenwald, H P; Dirks, S J; Borgatta, E F; McCorkle, R; Nevitt, M C; Yelin, E H

Abstract Comment Not full paper – reference only Paper available from Te Omanga Hospice

A randomised clinical trial of home nursing care for lung cancer patients

McCorkle, R; Benoliel, J Q; Donaldson, G; Georgiadou, F; Moinpour, C; Goodell, B

Abstract Comment Not full paper – a reference only Paper available from Te Omanga Hospice

Cancer prevention and detection course for nurses in developing countries

Ash, C R; McCorkle, R; Tiffany R

Abstract Comment Not full paper – a reference only Paper available from Te Omanga Hospice

The impact of hospice care in New Zealand

[Author unknown]

Abstract

The impact of hospice care in New Zealand MS Contin in New Zealand

Bonifant, J

Abstract Comment Not full paper – summary notes only

To Supplant, Supplement or Support? Organisational Issues for Hospices

Payne, Sheila

Abstract

Issues in the development of funding policies for hospice services

Carter, Helen; MacLeod, Rod; Hicks, Elizabeth

Abstract Comment Paper submitted to New Zealand Medical Journal

Update on the Status of Hospice/Palliative Care in New Zealand

MacLeod, Rod; Martin, Ann

Abstract An outline of some of the recent developments in hospice/palliative care in New Zealand. Comment Also a draft of a published paper as a print-out

The Care of the Terminally ill in the Wellington Region. Part 1- the who, where

Ainsworth, Paul; Bryham, Jan; Cox, Murray; Eglinton, Anna; Hayes, Ian; Hulbert, Leanne; MacLeod, Bryan; Nesdale, Annette; Preston-Thomas, Anne; Talbot, Michael

Abstract

The Care of the Terminally ill in the Wellington Region. Part 2- service use &am

Ainsworth, Paul; Bryham, Jan; Cox, Murray; Eglinton, Anna; Hayes, Ian; Hulbert, Leanne; MacLeod, Bryan; Nesdale, Annette; Preston-Thomas, Anne; Talbot, Michael

Abstract

People with Terminal Cancer in Auckland

West, Rae

Abstract Comment Research paper not completed at this stage

Co-ordination of district nursing & South Auckland Hospice nursing care: Dis

South Auckland District Nurses

Abstract

Symptom management in terminal care: A review of some methods and standards on a

Campbell, Graeme; Gannaway, Ivan

Abstract

Primary care for terminal cancer patients on Auckland's North Shore: A Survey of

Campbell, Graeme; Gannaway, Ivan

Abstract

The role of the hospice in the community and the history of its development in N

Watkins, Gayleen

Abstract

New Zealand Hospices Community Care

Davison, Peter H

Abstract Comment Not full study – questionnaire for the study only

Public or Private Provision: responsibility of accountability?

Easton, Brian

Abstract Comment

The need for a government policy on hospice funding

Gray, Alan

Abstract

Towards a national palliative care program

Collow, Mary

Abstract

Review of Hospice/Palliative Care services for the Southern Regional Health Auth

Penny, Anthea H

Abstract Comment Summary

Plan for development of hospice facilities in the North Shore and Rodney regions

North Shore Hospice; Warkworth/Wellsford Committee; Hibiscus Coast Hospice

Abstract Comment Final edition

Summary. Review of palliative care services within the North Health Region

Penny, Anthea H

Abstract

Respite provision for chidren who are dying and their families

Horsburgh, Margaret; Trenholme, Adrian; Nichols, Jan; Noonan, Michal; Bycroft, Karyn; Fa'alau, Fuafiva

The University of Auckland

Abstract This report considers the respite requirements of children and their families when a child is dying. The intention is to provide some background to inform debate concerning the need for respite for dying children and their families in particular as this relates to the provision of respite within a children’s hospice in Auckland. A review of literature and policy documents focusing on the actual need for respite when a child is dying is provided. Conclusions reached in the report acknowledge that the palliative needs of children are different from adults and that the majority of children die at home. The authors point to the need for a more detailed study with a particular focus on the needs of Maori and Pacific families. Comment Abstract take from Hospice New Zealand newsletter, December 2000, p, 6.

Report of working party to review services for the care of people who are dying

Working party

Abstract Comment Draft – version 3

The organisation and funding of hospice care: an international and New Zealand V

Smith, Kay; Barnett, Pauline

Department of Health, Wellington

Abstract

Development of purchase units and pricing of palliative care services

Maniparathy, Mani

Central Regional Health Authority

Abstract

"Cranford" Hawke's Bay Hospice, survey of patients and families

Small, Christine

Presbyterian Support Services – East Coast

Abstract

The development of funding policies for hospices : is casemix-based funding an o

Carter, Helen (Mary Potter Hospice, Wellington) (and others)

Examines the feasibility of implementing such funding for hospice/palliative care services and discusses the development of casemix classification systems for palliative care. Considers problems associated with implementing casemix-based funding. Highlights important issues that the hospice movement must address if it is to ensure its future within the new health environment.

An ethical position: administration of pain relief of dying patient

Vallance, Esther

Christchurch Polytechnic Institute of Technology

Uses principle-based ethics to develop an ethical position on the administration of pain relief to the dying patient. Cites the ethical principals of beneficence, non-maleficence, autonomy and justice. Examines the dilemma facing the nurse whether to administer pain relief which may hasten death or leave the patient to die unassisted. Considers both positive and negative aspects of negotiating care morally right for the patient. Argues that despite power disparity, negotiation should be used to make ethical decisions.

Doctors’ anxieties in end-of-life care

MacLeod, Rod

Identifies some of the anxieties that may arise for the GP who is caring for someone who is dying. Examines both professional and personal anxieties, highlighting the impact of teamwork and medication on professional concern.

The importance of ‘personal work’ in working with people who are dyi

Marsden, Sue

Waikato Hospital, Oncologist

Abstract also in Hospice New Zealand newsletter, September 1989/3

Relevance of the ICIDH-2 model for evaluation outcomes in palliative care

McPherson K; Carter, H; Brandon, P

Comment ‘paper in progress’ reference only

Euthanasia and palliative psychology in end-of-life care

Mitchell, K; Owens, R G

The University of Auckland

Like many other disciplines, psychology has made a number of contributions to the continuing debate on voluntary euthanasia. The present paper describes a number of aspects of palliative care practice and argues that (a) good palliative care should consider the issue of euthanasia (b) psychologists have much to contribute to the consideration of euthanasia, for example in clarifying issues of autonomy; and (c) there is potential for ‘palliative psychology’ that could be of value in end-of-life care. Finally, consideration is given to the relationship between euthanasia and the society of which it is a part. Comment Abstract only

The grief experience of a health professional

Jaggard, Jan

Abstract Comment Not full paper - Notes on the presentation only

A foot in both camps

Calvert, David

Abstract

Measurement of stress in clinical nursing

Benoliel, J Q; McCorkle R; Georgiadou, F; Denton, T; Spitzer, A

Abstract Comment Not full paper – reference only Paper available from Te Omanga Hospice

Death education

McCorkle, R

Abstract Comment Not full paper – reference only Paper available from Te Omanga Hospice

Most frequent and difficult problems encountered by nurse when caring for dying

Hepburn, Leona

Abstract Comment Not full paper – reference only Paper available from HNZ or contact Leona at Gisborne Palliative Care Services, Gisborne Hospital

Proceedings of Ethics: Broadening the Dimensions of Care

Hospice New Zealand in association with Mary Potter Hospice

Abstract Comment Not a full paper – reference only. Available from HNZ

Weakness in terminal illness

Lichter Ivan

Abstract

Learning to care: a medical perspective

MacLeod, Rod

Abstract

Health professionals' responses to multiple sclerosis and motor neurone disease

Carter, Helen; McKenna, Christine; MacLeod, Roderick; Green, Robyn

Abstract Comment Abstract only

The other side of the barrier or how to survive being chronically nice

Macready, Judy

Abstract

Relationships with other health professionals

Smales, Libby

Abstract

A vision for education in palliative and terminal care

Parr, Jean

Abstract

The annual poo lecture - constipation and diarrhoea in palliative care

[Author unknown]

Abstract

On arguing from ethical principles to practical conclusions: nurses and euthanas

Salmon, Beatrice

Abstract

Ethics of palliative care

Gillette, Grant

The National Health Committee, New Zealand

Abstract Comment Preliminary draft

Assessing changes in quality of life needs for patients in palliative care

Spicer, John (School of Psychology, Massey University) Jardine, Andrew (School of Psychology, Massey University) Allan, Simon (Arohanui Hospice, Palmerston North)

Asserts that most Quality of Life (QoL) measures are not appropriate for clinical use because of their highly standardized approach. Proposes an idiographic procedure that allows patients to generate their individual concerns, rank their importance, and rate both their actual and ideal status for each concern on any number of occasions. Reports the authors’ experience of using this procedure in a pilot study of 29 patients in a hospice programme, and discusses some of the problems surrounding the evaluation of idiographic procedures.

The use of quality of life assessments by nurses and terminally ill patients in

Hill, N

Mary Potter

A triangulated study, which seeks to identify patient’s quality of life and the effectiveness of using the results to form a joint patient/nurse care-plan to improve quality of life. The study also investigates the accuracy of nurse’s assessment of patient’s quality of life and whether this improves after joint care planning. The third aim of the study was to promote reflection on practice both individual and co-operate, which may lead to change in nurses’ and the hospice context. Comment ‘paper in progress’, abstract only

Quality of life issues in patients with disseminated breast cancer

McEvoy, M D; McCorkle, R

Abstract Comment Not full paper – reference only Paper available from Te Omanga Hospice

The use of quality of life data in clinical practice

Morris, Jenny; Perez, David; McNoe, Bronwen

Abstract Comment Not full paper – front page only

Preferences for quality or quantity of life in cancer treatment

Perez, David J

Abstract Comment Not full paper – front page only

A longitudinal study of health-related quality of life and utility measures in p

Perez, D J; Williams, S; Christensen, E A; McGee, R; Campbell, A V

Abstract Comment Abstract only

A longitudinal study of health-related quality of life and utility measures in p

Perez, D J; Williams, S; Christensen, E A; McGee, R; Campbell, A V

Abstract Comment Title page only